Navegando por Palavras-chave "Medical Oncology"

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    Como consentir sem entender?
    (Associação Médica Brasileira, 2009-01-01) Miranda, Vanessa Da Costa; Fêde, Ângelo Bezerra De Souza; Lera, Andréa Thaumaturgo; Ueda, Aline; Antonangelo, Daniela Veiga; Brunetti, Karina; Riechelmann, Rachel [UNIFESP]; Del Giglio, Auro; Faculdade de Medicina do ABC; Universidade Federal de São Paulo (UNIFESP); Hospital Israelita Albert Einstein Programa Integrado de Oncologia
    BACKGROUND: The Consent Form (CF) is an important document that informs patients about benefits and risks of a study, it assures patients the right to accept or reject participation in a procedure related to their health. Some authors believe that Consent Forms are complex and difficult to read for most people. OBJECTIVE: Correlate the difficulty of understanding CF, through the Flesch Index (FI) and Flesch-Kincaid Index (FKI), used in our oncology outpatient clinic, with the profile of our patient's education. We also wanted to verify readability and presence of the information which must be part of these CF according to item IV.1 from Resolution 196/96 of the Brazilian Health Council. RESULTS: We obtained 10 CFs, according to FI and FKI the mean was 38.5 and 18.16 respectively, indicating that, at least, 18 years of study are needed for the comprehension. This result is incompatible with the Brazilian population where more than 50% have less than 8 years of study. According to the quality of the CF, they were well elaborated, and had most of the necessary contents. When the authors correlated FKI and quality of CF, they concluded that the quality of CF does not correlate with readability (p= 0.884, Pearson correlation coefficients 0.053). CONCLUSION: Despite the good content quality of most of the analyzed CF, their level of reading difficulty is not compatible with the literacy skills of a major part of the Brazilian population.
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    Acesso aberto (Open Access)
    Oncode: um web app para pacientes oncológicos, para facilitar o gerenciamento e acesso de sua própria história médica
    (Universidade Federal de São Paulo (UNIFESP), 2020-11-26) Solano Junior, Paulo Eduardo Krauterbluth [UNIFESP]; Horibe, Elaine Kawano [UNIFESP]; Universidade Federal de São Paulo
    Introduction: The number of cancer patients is increasing, they may have a vast and complex medical history, which makes it difficult to store, manage and access this information. Objective: To develop and validate the ONCODE WebApp where cancer patients can store, manage and access information about their medical history. Method: The Design Thinking methodology was used, which is divided into four phases: Phase 1 - Discovery: Desk research was carried out through review of literature and existing technologies, interviews with selected patients. Phase 2 - Define: data from phase 1 were analyzed to define the ONCODE format; Phase 3 - Develop: Brainstorming sessions were held among researcher, co-supervisor, advisor and program developer. Phase 4 - Deliver: The prototyping was carried out and the prototype was evaluated by the patients. Results: Phase 1 - Discovery: Through Desk research and review of literature and existing technologies, the current panorama of Personal Health Records was defined. Interviews conducted with cancer patients uncovered their difficulties. Phase 2 - Define: data from phase 1 were analyzed to define the difficulties faced by cancer patients in storing, managing and accessing their medical history. Phase 3 - Develop: The ONCODE prototype was developed. Phase 4 - Deliver: The ONCODE prototype was delivered, a responsive Web App that cancer patients can use to store, manage and access their medical history information. Conclusion: The Web App ONCODE was developed, a digital solution for cancer patients to facilitate management and access to their own medical history.