Quality-of-Life Assessment in Children With Fecal Incontinence

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dc.contributor.authorFilho, Humberto S.
dc.contributor.authorMastroti, Roberto A.
dc.contributor.authorKlug, Wilmar A.
dc.contributor.institutionUniversidade Federal de São Paulo (UNIFESP)
dc.contributor.institutionSanta Casa São Paulo Med Sch
dc.date.accessioned2016-01-24T14:40:21Z
dc.date.available2016-01-24T14:40:21Z
dc.date.issued2015-04-01
dc.description.abstractBACKGROUND: Fecal incontinence is a clinical condition that causes embarrassment and changes the perception of quality of life. the absence of a specific tool for assessing fecal incontinence in children led us to adapt an instrument originally developed for adults, which has already been validated into Portuguese.OBJECTIVE: the purpose of this work was to evaluate the quality of life of children with fecal incontinence.DESIGN: This is a single-center, prospective study based on the application of survey. the Fecal Incontinence Quality of Life questionnaire was modified by eliminating 2 questions related to sexuality and by substituting the word depressed with sad in the statement, I feel depressed.SETTING: the study took place at a tertiary academic medical center.PATIENTS: Forty-one children >5 years of age, with incontinence of organic etiology and preserved cognition but without stomy, were interviewed with the use of the Fecal Incontinence Quality of Life modified questionnaire. To evaluate the discrimination validity, 28 healthy children were interviewed as control subjects.MAIN OUTCOME MEASURES: As to reproducibility, a test/retest was performed, involving 25 children. for construct validation, the Fecal Incontinence Quality of Life modified was correlated with the generic instrument Autoquestionnaire Qualite de Vie Enfant Image with the continence index São Paulo Score of Continence.RESULTS: the average values by scale included lifestyle, 3.1; emotional, 2.8; behavior, 2.3; and embarrassment, 1.6. the average values for the control group included lifestyle, 3.7; emotional, 4.0; behavior, 3.6; and embarrassment, 3.6. the instrument showed a general reliability of 0.78, measured by the Cronbach a. Reproducibility was also >0.90 according to the Cronbach a.LIMITATIONS: the intrinsic characteristics of children include their constant growth, and this presented a challenge in our search for an instrument that permitted us to identify and measure these variations.CONCLUSIONS: the experiment showed a reduction in all of the scale values, particularly for embarrassment in children with fecal incontinence.en
dc.description.affiliationIrmandade Santa Casa Misericordia São Paulo, Dept Pediat, São Paulo, Brazil
dc.description.affiliationSanta Casa São Paulo Med Sch, Dept Pediat, São Paulo, Brazil
dc.description.affiliationSanta Casa São Paulo Med Sch, Dept Surg, São Paulo, Brazil
dc.description.sourceWeb of Science
dc.format.extent463-468
dc.identifierhttp://dx.doi.org/10.1097/DCR.0000000000000324
dc.identifier.citationDiseases of the Colon & Rectum. Philadelphia: Lippincott Williams & Wilkins, v. 58, n. 4, p. 463-468, 2015.
dc.identifier.doi10.1097/DCR.0000000000000324
dc.identifier.issn0012-3706
dc.identifier.urihttp://repositorio.unifesp.br/handle/11600/38966
dc.identifier.wosWOS:000350972900021
dc.language.isoeng
dc.publisherLippincott Williams & Wilkins
dc.relation.ispartofDiseases of the Colon & Rectum
dc.rightsinfo:eu-repo/semantics/restrictedAccess
dc.subjectAnorectal anomaliesen
dc.subjectFecal incontinenceen
dc.subjectHirschsprung diseaseen
dc.subjectQuality of lifeen
dc.subjectQuality of life in fecal incontinenceen
dc.titleQuality-of-Life Assessment in Children With Fecal Incontinenceen
dc.typeinfo:eu-repo/semantics/article
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